My great-nephew Jake (the one who has Angelman Syndrome (AS) and agenesis of the corpus callosum (ACC), both extremely rare conditions) participated in the Angelman's Walk-a-thon a few weeks ago. For the first time, he was able to cross the finish line unassisted.
We're heading down to Maryland on the 19th for Jake's annual charity golf tournament which helps pay for his dolphin therapy. We don't golf... but we do party, so it should be a lot of fun.
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