Our niece blogs about his life on a semi-regular basis, chronicling both the good and bad. Her May 4 entry made me want to cry.
I have no doubt that miracles happen and that healing is more about a person's attitude and perspective than modern medicine, but I have come to the realization that Jake can't be fixed (his chromosome is partially missing). More importantly, I have come to accept that he is who he is because God wants him to be that way and that he was sent to me to help me help others. I am still figuring it all out and trying to find the best avenue to take. Obviously if there are new treatments and things along the way that can help Jake, I'm all for it, but I am done trying to fix/cure him. Does this make sense? I'm still figuring it all out. This is the best way for me to "rationalize" something that I thought (and sometimes still do) was completely unfair and unimaginable to me. He is my happy Sugar Man who continues to bring smiles to everyone every day. For that, I am grateful.Jake does bring smiles to everyone everyday. Perhaps his purpose in life is to bring out the best in other people.